Bingara residents will remember the courageous fight young man, Grant Dunstan, put up against this terrible disease some years ago. Cystic Fibrosis Australia, (CFA) receives no government backing, so the funds raised through these rallies – nearly a half million dollars – with auctions, raffles etc, make a huge difference.
Marilyn Crook and Suzette Rogers doing their bit to find a cure for cystic fibrosis.
This much needed funding goes to the Cystic Fibrosis National Data Registry (NDR) and supports services. This registry involves genetic research and allows study into the impact of new treatment and technology. Cystic Fibrosis is a genetic condition mainly affecting the lungs and digestive system – management requires intensive chest physiotherapy up to two hours every day, and taking up to 40 enzyme tablets every day to aid digestion. Due to advancements, the average life expectancy of someone living with CF has increased from the teens to the mid thirties.
Approximately one in every 2,500 babies is born with CF. There are a million genetic carriers of CF in Australia, and as yet there is no cure! To kick start fund raising in Bingara for CF, there will be a dinner/ dance at the Bingara RSL Club August 4.
Marilyn Dixon will provide a delicious meal followed by great dance music for all ages provided by “Those Gals”. There will also be great raffle prizes on the night and the weeks leading up to the rally. Roslyn has a beautiful hot pink rally car (both inside and out) with the number 22 – hence the lady crew must wear pink from head to toe (including their tutus).
So if you see two ladies in pink selling raffle tickets, they will greatly appreciate your support for this great cause.
Contributed by Marilyn Childs